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Myroslava Tataryn

Disability Studies – Fertilizer for Cultivating Local Democracy

Local democracy may be less about structured democracy and more about things that happen at the community level that connect people and cultivate sharing. Yet, even within this movement dedicated to inclusive community, people with disabilities are typically left out. What assumptions allow for the continued systemic marginalization of people excluded from generalized public considerations of “all people”? What ideas and principles of local democracy can help us to move away from this cycle of discrimination? How can Disability Studies deepen our understanding of concepts such as dependence, interdependence and reciprocity? And how can a social model of disability inform the development of democratic communities?

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The Integrated Circle of Care is a fluid and collaborative approach followed by workers from different agencies weaving through St. John’s Kitchen. Within this approach, staff members from each agency are aware of their specific personal roles. However, the high level of collaboration between workers means that people can approach any worker, without knowing their agency association or specific role, and still receive support – either that worker will support the person directly, or they will introduce the person to another worker who can support the person more appropriately.

This approach makes relationships more natural and support more accessible. Workers from different agencies are easily approachable, meaning that people build relationships with multiple workers. Having relationships with different workers is important to a person’s support – it makes support from a trusted source easy to find, and means that people have a choice of worker to approach in any given situation.

In order to maintain a circle of care around a person, workers from different agencies ask for consent from the person for information to be shared between workers. Continuous communication between workers helps to ensure that people do not fall into gaps between services, and also that services are not duplicated.